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Samantha Barber is CEO of Gene People, a charity that provides support and information to those affected by genetic conditions and their families, and to condition-specific support groups. Prior to Gene People, Samantha was Joint Interim CEO of the Tuberous Sclerosis Association, and Interim CEO of the Batten Disease Family Association. She is a Director of Recordati Rare Diseases Foundation.

A charity sector lifer, Samantha has worked with a range of charities both as an executive and trustee. She has interests in health, housing and heritage. Currently, she is a trustee of Bexhill Heritage Society, and committee member for the Chartered Secretaries’ Charitable Trust.

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